Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts


Meninggal di Usia 28, Gisca: Putri Dewi Yull dan Ray Sahetapy yang Bangkit dari Koma Selama 30 Menit

diwida.NEWS Banyak orang tidak menyadari bahwa Ray Sahetapy dan Dewi Yull telah kehilangan anak perempuan mereka bernama Gisca Putri Agustina Sahetapy.

Gisca merupakan anak pertama kedua belasnya yang wafat pada tanggal 11 Juni 2010 di usia 28 tahun. Menurut laporan dari Surya serta Tribun Style, Gisca lahir dengan keadaan tunarungu.

Dia juga mengidap peradangan pada otak. Sehingga, Gisca perlu ditangani di Rumah Sakit Dr. Suyoto, Jakarta Selatan selama tiga bulan serta menjalani prosedur sedot cairan.

Sebelum jatuh sakit, Gisca mengantongi status pernikahan dengan Doni Prasetyo Kuntandi di awal tahun 2005. Mereka memutuskan untuk berpisah pada 2008 setelah dikaruniai seorang putri yang diberi nama Ramiza Prasanca Kuntadi.

Pada saat itu, Gisca sempat bangkit dalam waktu 30 menit. Tetapi ternyata, itu adalah pengalaman terakhirnya di bumi.

Gisca terbangun saat melihat mantan suaminya, Doni, ada di rumah sakit. Doni sempat memeluk serta mengecup dahi dari mantan istrinya tersebut.

Gisca berhasil berkomunikasi dengan Doni menggunakan bahasa isyarat. Dia juga mencoba untuk memeluk Dewi Yull sebelum akhirnya meninggal.

"Allahu Akbar, meskipun Mas Doni hanya menyentuhnya dan menemaninya sambil tetap dapat berbicara dengan bahasa isyarat. Ia pun mencoba untuk merengkuh saya," ungkap Dewi Yull.

Untuk Doni, Gisca berharap agar eks suami tersebut merawat anak laki-lakinya dengan baik.

"Ramiza diminta dijaga," ungkap Doni kembali.

Ramiza sekarang sudah tumbuh menjadi orang dewasa. Di tahun 2024, dia menyampaikan bahwa dirinya masih dapat membayangkan wujud dari sang ibu.

"Pasti hanya sebagian yang diingat, tetapi pastikan membawanya kepada ibu saat ibu sudah mencukur rambutnya," ujar Ramiza, demikian dilansir dari Kompas.com.

ternyata, anak perempuan dari Dewi Yull tersebut meninggal pada tanggal lahir sang bapaknya. Ramiza juga mengaku baru mengetahuinya belakangan ini.

"Setelah menceritakan bahwa itu bukan benar-benar kebetulan, barulah saya teringat setelah mendapat informasi tersebut. Ibuku telah tiada dan yang tersisa hanyalah rasa kagum," jelasnya.

(*)



ระวังสายเกินแก้ เปิด 5 อาการ สัญญาณบ่งบองว่า "ร่างกายภูมิตก"

เป็นหวัดบ่อย แผลหายช้า รู้สึกอ่อนเพลียตลอดเวลา ระวัง นี่อาจเป็นสัญญาณว่าภูมิคุ้มกันของคุณกำลังลดลง รู้ทันอาการและสาเหตุ ก่อนสุขภาพพังโดยไม่รู้ตัว วันนี้เราได้รวมเอา 5 สัญญาณบ่งบอกว่า " ร่างกายภูมิตก " มาฝาก เพื่อให้ทุกคนได้สังเกตตัวเองก่อนสายเกินแก้

5 อาการร่างกายภูมิตก เมื่อภูมิคุ้มกันต่ำร่างกายมักจะติดเชื้อโรคและป่วยได้ง่ายขึ้น ซึ่งอาการภูมิตกที่ควรสังเกตมีดังนี้

  1. มักเป็นหวัดบ่อย ๆ โดยไม่รู้สาเหตุ
  2. เป็นโรคติดต่อเดิมซ้ำหลายครั้ง เช่น โรคไซนัสอักเสบ โรคไข้หวัดใหญ่ และอาจติดเชื้อรา เชื้อแบคทีเรียเดิมบ่อย ๆ เช่น ติดเชื้อราในปาก ภาวะหูอักเสบ เป็นร้อนใน ผู้หญิงมีตกขาวที่มีสีหรือกลิ่นผิดปกติ ซึ่งเป็นผลมาจากภาวะภูมิคุ้มกันต่ำที่ทำให้ร่างกายอ่อนแอและติดเชื้อได้ง่าย
  3. แผลหายช้าเนื่องจากระบบภูมิคุ้มกันซึ่งมีหน้าที่กระตุ้นให้ร่างกายรักษาตัวเองอ่อนแอลง
  4. รู้สึกอ่อนเพลีย อ่อนล้าตลอดเวลา
  5. ระบบทางเดินอาหารมีปัญหาทำให้มีอาการปวดท้อง ท้องร่วง หรือน้ำหนักลดโดยไม่มีสาเหตุ

สาเหตุของอาการภูมิตก

  • อาการภูมิตกหรือภูมิคุ้มกันต่ำเกิดได้จากหลายสาเหตุ โดยอาจเป็นมาตั้งแต่เกิดเนื่องจากพันธุกรรม หรือเป็นโรคที่ทำให้ภูมิคุ้มกันต่ำลง รวมไปถึงวิธีการใช้ชีวิตบางอย่างก็อาจทำให้ภูมิคุ้มกันตกลงได้ด้วย ซึ่งสาเหตุที่ทำให้ภูมิคุ้มกันต่ำได้แก่
  • การใช้ชีวิตที่ส่งผลต่อสุขภาพ เช่น พักผ่อนไม่เพียงพอ ไม่ออกกำลังกาย ขาดโปรตีน ดื่มแอลกอฮอล์และสูบบุหรี่เป็นประจำ รวมถึงมีความเครียดเป็นเวลานานก็สามารถทำให้ภูมิคุ้มกันต่ำได้
  • โรคมะเร็งส่งผลต่อการผลิตเซลล์เม็ดเลือดในระบบภูมิคุ้มกันซึ่งมีหน้าที่ต่อสู้กับเชื้อโรค ทำให้ภูมิคุ้มกันตก
  • การติดเชื้อ HIV ที่โจมตีและทำลายเซลล์ของระบบร่างกายในการป้องกันโรคนั้น ส่งผลให้เกิดโรค AIDS ซึ่งถือเป็นโรคประเภทของการขาดแคลนการทำงานของระบบภูมิคุ้มกัน
  • การบริหารยาซึ่งกระทบกระเทือนต่อระบบภูมิต้านทานของร่างกายจนนำไปสู่ภาวะภูมิคุ้มกันอ่อนแอ อาทิน้ำยาระงับการอักเสบที่ชื่อว่า コルチコステロイド (Corticosteroids), เครือข่ายยากดความแข็งแรงในการป้องกันโรค, น้ำยายาสำหรับบรรเทามะเร็ง และการฟื้นฟูกู้จากการได้รับสารเคมีในทางการแพทย์

วิธีเสริมสร้างภูมิคุ้มกันให้ร่างกาย

1. กินอาหารที่มีประโยชน์

การบริโภคอาหารที่มีประโยชน์พร้อมสาร питательจำพวกต่างๆ จะเสริมสร้างความแข็งแกร่งให้แก่ระบบภูมิคุ้มกัน ในขณะเดียวกัน วิตามิน แร่ธาตุ และโปรตีน ซึ่งเป็นองค์ประกอบสำคัญสำหรับการทำงานของเซลล์ในระบบนี้ ก็จะถูกเพิ่มเข้าไปจากการรับประทานอาหาร ส่งผลดีโดยรวมของการบริหารอาหารแบบครบทั้งห้ากลุ่มและการบริโภควัตถุดิบธรรมชาติเช่นผักและผลไม้ เพื่อป้องปรายโรคภัยและความอ่อนแอของระบบภูมิคุ้มกัน

2. ออกกำลังกาย

การฝึกฝนแบบสม่ำเสมอนั้นมีประโยชน์ต่อการทำหน้าที่ของระบบรักษาโรคในร่างกาย เพื่อให้มันดำเนินงานอย่างต่อเนื่อง นอกจากนี้ยังทำให้เซลล์สามารถทำงานได้อย่างมีประสิทธิภาพมากขึ้นสำหรับการกำจัดเชื้อไวรัสและโรคร้ายแรง อีกทั้งยังช่วยบรรเทาความเครียด ซึ่งถือว่าเป็นปัจจัยสำคัญที่นำไปสู่ภาวะภูมิคุ้มกันบกพร่อง

3. นอนหลับให้เพียงพอ

การนอนหลับที่เพียงพอและตรงตามตารางเวลานั้นมีผลทำให้ระบบร่างกายของเรามีการทำงานในทางปฏิกิริยาที่เหมาะสมและสร้างภูมิต้านทานได้อย่างมาก โดยเฉพาะเมื่อรับวัคซีน จะช่วยปรับปรุงความสามารถในการปกป้องตนเองจากเชื้อไวรัส นอกจากนี้ การนอนอย่างครบถ้วนยังอาจบรรเทาอาการของการเกิดภูมิแพ้อีกด้วย เพราะการนอนพักผ่อนที่เพียงพอจะมอบพลังงานแก่ระบบภูมิคุ้มกันของเราสำหรับการทำลายเชื้อก่อโรคร้าย และเสริมความแข็งแกร่งให้กับโครงสร้างภายใน เพื่อรับมือกับการโจมตีจากเชื้อไวรัส หรือแบคทีเรีย ในขณะเดียวกัน หากเราเป็นผู้ใหญ่ เราควรมีการนอนประมาณ 7-9 ชั่วโมงต่อวัน เพื่อมอบโอกาสให้ร่างกายของเราฟื้นฟูกำลังและความสามารถในการทำงานอยู่ในระดับสูงสุดของระบบภูมิคุ้มกัน

4. หลีกเลี่ยงบุหรี่และแอลกอฮอลล์

การสูบบุหรี่กระทบทัพทานาลภาพภายในร่างกายในการต่อกรกับโรคร้าย ทำให้มีโอกาสเสียหายจากเชื้อโรคและการป่วยมากกว่าปกติ นอกจากนี้ยังลดปริมาณสารแอนติก Oxidant ในกระแสเลือดไปพร้อมๆ กัน อีกด้านหนึ่ง หากดื่มน้ำเมาแค่วันละสองสามแก้ว จะสามารถจำกัดความสามารถของระบบรักษาสมดุลทางสรีรวิทยาได้นานจนถึง 24 ชั่วโมง มันอาจจะชะลอความเร็วของการฟื้นฟูกำลังพลเมืองจากการบาดเจ็บหรือการเข้าสู่ภาวะผิดปกติตามธรรมชาติ และทำให้อาวุธประจำกายของเราอ่อนแอลงไป การพยายามหลีกเลี่ยงพฤติกรรมเหล่านี้จะเป็นประโยชน์อย่างมากสำหรับการทำงานประสิทธิภาพยิ่งขึ้นของทัพทานาลภาพร่างกาย



“수술해도 될까요?” 선택의 기준은… [아미랑]

암 환자들은 암 진단을 받은 후, 본인이 어떤 암에 걸렸으며, 그 암이 어떻게 진행될지 등에 대해 궁금해 합니다. ‘암은 몇 종류가 되는지’ ‘오래 살 수 있는 확률은 얼마나 되는지’ ‘암세포가 갑자기 퍼지면 어떡하는지’ 같은 것들을 항상 물어보십니다. 이때, 저는 환자가 궁금해 하는 것들은 충분히 설명해 줍니다. 그 후, 다음과 같이 말하곤 하죠.

“암은 인간의 모든 장기, 피부, 상피세포 등 살아 있는 조직 어디에서든지 생깁니다. 머리카락, 손발톱, 치아를 제외 한 모든 장기에서 생길 수 있고, 혈액과 뼈에도 생깁니다. 암은 약 270여 종이 있습니다. 생기는 모양이나 크기, 환경 등 모든 게 다 다르다는 것을 고려하면, 세계 인구와 동일한 70억~100억 가지의 암이 있다고 말할 수 있습니다.”

우리나라에서 제일 흔하게 발생하며 제가 가장 많이 집도한 ‘위암’을 예로 들어보겠습니다. 위암은 환자마다 생기는 위치, 모양, 크기, 조직 분화도, 발생 원인이 다릅니다. 발병 원인이 다르다면 당연히 사람마다 치료법도 달라져야 하는 게 아닐까요? 맞습니다. 획일적인 치료 시스템으로 환자를 치료하는 것은 모순이죠. 같은 위암이라고 할지언정, 그 치료는 환자의 여건에 따라 달라져야 합니다. 보호자의 태도, 환자의 나이·상태·의지 등을 충분히 고려해 환자에게 맞는 ‘맞춤 치료’가 돼야 합니다. 사실 치료 방법을 선택하는 사람은 의사가 아니라 환자여야 합니다.

“죽으면 죽었지, 약물 치료는 더 이상 못 하겠습니다. 죽더라도 편안하게 생을 마감하고 싶습니다. 항암 치료는 사는 게 아닙니다.”

갓 육십을 넘어선 교수 환자의 발언이다. 나이가 들어가는 것을 고려하면 지금의 예순은 마치 젊음일 정도이나, 그는 자신의 생활 방식에서 갈망하는 부분을 포기했다. 그는 약물 치료 효과와 함께 발생할 수 있는 부작용에 대해 정확히 이해하고 있었다. 통증 때문에 매달리는 대신 항진통제약에 의존하기보다는 단기간이라도 안락하게 살아보고자 하는 것이었다. 이런 입장인 그에게 나는 약물을 사용한다면 구역감, 오심, 설사, 탈모 및 빈혈 등의 부작용이 있을 수 있으며, 만약 치료를 받지 않으면 질병 상태가 더욱 가속화될 수도 있다는 사실을 설명하였다.

그 환자는 저의 조언으로 인해 약물 요법을 시작하였으나 단지 하나의 주기 동안만 받아 이후에는 중단하였습니다. 대신 그는 면역 체계를 강화하여 암과 함께 생활하는 방식을 선택했습니다. 결국 그의 결정은 정당함을 입증받았으며, 이것은 지금 당사자의 행복한 삶에서 나타납니다. 그 환자는 거의 3년간 좋은 상태를 유지하고 있고, 만약 계속 이렇게 된다면 실망스럽지 않을 것으로 자신감을 표현했습니다.

다른 사례로, 그때 그분은 간암 말기(4단계) 진단을 받아 피부색이 어두워지면서 검게 변하고 있었습니다. 마치 생명력마저 서서히 빠지는 느낌이었죠. 그러나 몇 개월 동안 치료를 통해 증상이 좋아졌고, 이에 자신감을 얻어 더 적극적으로 수술을 주장하기 시작했습니다. 국내 최고 권위자를 찾아간 그는 해당 전문가에게 수술 가능성과 일정까지 문의하였다고 하네요.

한번 다시 고민해 봐 주십시오. 현재 상태에서 수술하는 것은 별 의의가 없어요. 간에는 이미 두 곳에 암 세포가 있으며 그 크기가 12센티미터라서 수술하기 매우 까다롭습니다. 게다가 중요한 점은 신체 상태가 양호하지 않아 수술을 이겨내는 것이 쉬워 보이지 않습니다.

내 의견에 반해서 환자가 수술을 진행했습니다. 결과는 불보듯 뻔했습니다. 절개를 해본 결과 이미 치료할 수 없을 정도의 복막암 종양 상태여서, 이식된 암 세포들이 있는 림프 결절들만 제거한 다음 재봉했습니다. 그런 와중에 그 환자는 수술 후유증 때문에 오랜 기간 고통받았고, 회복되지 않은 체력을 되찾으려다 더욱 힘든 시간들을 보내야 했습니다. 나중에 '수숤했다가는 좋지 않을 거란 내 조언을 들어주면 얼마나 좋겠나' 하고 후회했지만 이미 늦은 일이었죠.

어느 측면에서 볼 때 '수술'은 인체의 면역 체계를 의도적으로 침해하는 가장 극단적 방법일 수도 있습니다. 만약 수술로 인하여 방어막이 파괴되더라도 이를 통해 얻을 수 있는 혜택이 더욱 클 경우에는 그러한 결정을 내리는 것이 옳다고 할 수 있겠습니다. 그러나 수술 이후 발생할 수 있는 합병증들이 상당히 큰 비중이라 판단된다면, 수술하지 않는 것을 선택해야 합니다. 앞서 말했던 환자와 같은 경우에도 수술 여부를 놓고 보았을 때, 약 1 대 99 또는 10 대 90의 확률로 본다면 수술보다는 다른 길을 택했어야 한다는 생각이 듭니다. 어떻게든 오래 살아보고 싶었던 그 사람의 간절함 때문에 더더욱 아쉬움이 남습니다.

암을 치료하다 보면, 어려운 선택의 문제에 직면할 때가 많습니다. 그럴 때마다 우리에게 필요한 것은 의사든 환자든 ‘겸손함’이라는 생각이 듭니다. 수술을 잘할 것이라는 의사의 오만, 오래 살고 싶다는 환자의 욕심이 가끔 화를 부릅니다. 반면 최선을 다해 감사하고 남은 시간을 성실하게 살겠다는 겸손함은 복이 되기도 합니다.

선택의 때마다 모든 사람은 무리를 하지 않고 주의를 기울여야 한다는 것을 알아두어야 해요. 그것은 간단하지 않은 일입니다. 그러나 부적절한 결정 때문에 지게 되는 비용이 매우 클 것이므로 더욱 조심스럽게 판단해야 합니다.

오늘도 사랑하고, 축복합니다!

✔ 외롭고 힘드시죠?

암 환자 지친 마음 달래는 힐링 편지부터, 극복한 이들의 노하우까지!

https://health.chosun.com/amirang/amirang.jsp?ref=page

↑지금 바로 무료 구독 신청하세요.

​


Cerebrospinal Fluid Leaks: The Hidden Cause of Painful Headaches Often Overlooked

When retired nurse Rose Kruze began experiencing severe headaches, she was unaware that these could be indicative of a far graver issue.

"The pain is throbbing so intensely in my head — I can barely form thoughts," she explained.

I went from being highly active to becoming completely inactive, spending my days lying in bed.

The grandmother from Townsville attributed her discomfort to either sinus problems or stress, finding momentary ease through the use of ice packs and caffeine.

However, after six weeks, the intense headaches grew unbearable.

It transpired that cerebrospinal fluid (CSF) was escaping through a small opening in the 63-year-old's spinal cord.

The leakage resulted in intracranial hypotension, a situation characterized by unusually low pressure within the cranium.

"As the brain sits suspended in fluid," stated Townsville-based neurosurgeon Ramon Navarlo.

If you remove the liquid from underneath, the brain will droop, potentially causing various headaches.

'Private investigator job'

It is thought to impact approximately five out of every 100,000 individuals; however, many believe the actual figure may be significantly greater.

Doctor Navarro mentioned that this condition tends to be significantly under-recognized since these leakages prove extremely difficult to detect.

"It's a little bit like a private investigator job to find the leak that's causing all these problems," he said.

Following multiple scans and examinations, physicians identified the cause of Ms Kruze's headaches — a tiny hole that was continuously draining fluid into the spinal canal.

Interventional neuroradiologist Dr. Muhammad Usman Manzoor guided a catheter up from her leg vein and employed specialized adhesive to seal the opening.

He thinks that the surgery, carried out at the Townsville University Hospital in November of last year, marked a first for Queensland.

"As soon as we sealed that fistula, we were certain it would be an immediate cure for the condition," stated Dr Manzoor.

The process was more minimally invasive compared to other treatment options, resulting in Ms Kruze staying just one night at the hospital.

She now has her life restored and possesses the vitality to stay abreast of her eight grandchildren.

'Such a rare diagnosis'

Medical professionals think that due to insufficient awareness about cerebrospinal fluid (CSF) leaks, numerous additional patients could be enduring symptoms without seeking help.

Dr Manzoor mentioned that the reason for the majority of leaks remained unidentified.

"As it is an uncommon condition, individuals might experience symptoms for numerous months or even years without receiving a proper diagnosis," he explained.

Ms Kruze found comfort in a Facebook group consisting of other people who refer to themselves as "leakers."

"They've discovered many instances where doctors didn’t take their concerns seriously, prescribed numerous medications, or suggested surgeries, leaving them with difficulties," she explained.

I am extremely grateful that my doctors treated it with seriousness and stated, 'We will locate it.'

This is quite genuine and extremely disabling.



Scientists Unveil the Origin of Gluten Intolerance

Approximately for every 100 individuals, foods that contain even trace amounts of gluten can cause significant discomfort in their digestive system.

Although a chain reaction of immune responses can be followed back to their origins, genetic roots , a number of contributing factors also play a role, which makes it challenging to trace the exact sequence of events leading to the development of gluten intolerance.

An international research group headed by scientists from McMaster University in Canada utilized genetically modified mice to pinpoint a significant function performed by the cells constituting the intestinal lining. This breakthrough represents a key advancement that may pave the way for novel treatments.

In simple terms, celiac disease is essentially an autoimmune condition activated by the existence of a set of structural proteins called gluten within the intestines.

Eating virtually anything composed of wheat, barley, or rye – which includes the majority of baked products, breads, and pasta – makes people with the condition in danger of experiencing bloating, discomfort, diarrhea, constipation, along with occasional acid reflux and nausea.

At present, the sole method to prevent the symptoms is by steering clear of the foods that set off reactions.

The sole method for managing celiac disease currently is to completely remove gluten from one’s diet. says McMaster’s gastroenterologist Elena Verdu stated, “Achieving this is challenging, and specialists concur that adhering to a gluten-free diet alone is not enough.”

Approximately ninety percent of individuals who receive this diagnosis have a pair of genes coding for a specific protein known as HLA-DQ2.5 Of the leftover 10 percent, the majority possess a comparable protein known as HLA-DQ8.

Similar to other types of 'HLA' (or human leukocyte antigen ) proteins, these proteins display fragments of fallen invaders akin to grim trophies held high. class of immune cells , alerting other protective tissues to stay vigilant.

For the particular instances of HLA-DQ2.5 and HLA-DQ8 proteins, they are structured to bind pieces of gluten peptides that resist breakdown, which then directs destructive T-cells to initiate an attack.

Sadly, these guidelines do not clearly differentiate between a genuine threat and comparable substances within our system, which means individuals carrying the genes face an increased likelihood of developing various autoimmune disorders.

Not everybody Individuals who carry either HLA-DQ2.5 or HLA-DQ8 genes may develop an autoimmune condition such as celiac disease. This can only occur when these fragmented bits of gluten are transported through the intestinal lining by specific cells. transporting enzyme This binding modifies the peptide, making it even more identifiable.

The cells within the intestinal lining release this transport enzyme into the gut, thus playing a crucial part in the initial phases of the condition. Additionally, these cells are recognized for their significant involvement. express the family of proteins To which HLA-DQ2.5 and HLA-DQ8 belong, these are usually controlled by inflammatory reactions within the intestines.

It has not been evident how this staging area for individuals with celiac disease operates within the actual development of the condition.

To emphasize this crucial aspect of the process, the research group verified the presence of the primary immune complex within the intestinal cell linings of individuals suffering from both managed and unmanaged celiac disease, as well as in rodents engineered to carry the human gene HLA-DQ2.5.

They then created functional living models of the gut, called an organoid Using mouse intestinal cells to examine the expression of their immune proteins in detail, exposing them to inflammatory stimuli along with both predigested and whole gluten.

This enabled us to pinpoint the precise cause-and-effect relationship and demonstrate conclusively whether and how the reaction occurs, says McMaster's biomedical engineer Tohid Didar.

It became clear from this that the cells lining the gut were not merely innocent victims enduring unintended harm during an erroneous attempt to eliminate gluten from the body—they played a crucial role. These cells presented a mixture of gluten fragments degraded by gut bacteria directly to transport enzymes, which then delivered these components right to the gluten-specific immune cells.

Understanding the kinds of tissues implicated and how they are affected by inflammation-causing microorganisms provides scientists with additional therapeutic targets. This could enable countless individuals globally to savor a couple of gluten-containing pastries without experiencing adverse effects.

This study was released in Gastroenterology .



World Health Organisation Grants 'Monumental' Diagnosis Code to Visual Snow Syndrome

For Steve Gillis, tinnitus, brain fog, and visual disruptions have become "ever-present companions" ever since he recovered from a virus in 2023.

He said he sees through "a set of filters" with a black and white pattern akin to analogue TV static, and has dark floaters that drag across his vision.

Even after numerous tests spread across half a year, no alterations were found in either his eyes or brain.

Mr Gillis was ultimately diagnosed towards the end of last year with visual snow syndrome (VSS), which is a neurological disorder impacting vision, auditory perception, equilibrium, sensory interpretation, and cognitive abilities.

Experts approximate that VSS impacts roughly 2 to 3 percent of the worldwide population, and they state that the precise cause remains unclear. However, possible triggers might include concussion, illness, pregnancy, or migraines.

Sometimes, people can be born with VSS.

Mr Gillis mentioned that the condition greatly impaired his capacity to drive, read printed material, and play golf. He frequently felt overwhelmed when navigating shopping centers and public spaces.

"However, even when I'm at home and there are several individuals in a room with various discussions taking place, I frequently end up retreating to my bedroom or simply withdrawing from that setting," he explained.

Often, I encounter remarks like, "I heard you have an illness, yet when I see you, you appear to be doing well," implying that since I seem okay externally, I should feel perfectly fine internally.

it might feel very lonely.

Looking for answers

Mr Gillis endured a lengthy path to his diagnosis, expressing frustration over what he saw as insufficient knowledge among healthcare providers.

He stated, 'The guidance essentially amounted to "We hope your body can figure out how to heal itself," and "Good luck."'

Dr Steve Leslie, a behavioral optometrist based in Perth, mentioned that individuals dealing with VSS frequently face rejection from healthcare providers.

"Quite often, individuals consult with five or six physicians in search of answers, yet nobody provides a diagnosis due to the limited awareness surrounding this condition," he explained.

In December 2024, the World Health Organization assigned VSS an identification code within the eleventh version of the International Classification of Diseases (ICD-11). Advocates believe this could result in increased acknowledgment and public understanding.

The inclusion came after advocacy efforts by the international nonprofit organization, the Visual Snow Initiative, which took place a year earlier.

Sierra Domb, who established the program, herself deals with this condition and mentioned that she was informed obtaining a permit might take between 30 to 50 years—a timeframe she chose not to endorse.

She mentioned that tears came down when she got the "momentous" news regarding the diagnosis code.

She mentioned how her thoughts instantly turned to all those individuals and their loved ones who had been looking for answers for many years, only to be ignored, told that their symptoms did not truly exist, or that they were just exaggerating, or even being brushed off because they were considered ‘too young’.

Dr Leslie mentioned that the ICD code brought significant relief to patients, and she hopes this will result in increased research prospects as well as greater recognition of the issue amongst healthcare professionals.

Mr Gillis expressed hope that this addition would lead to "increased recognition among healthcare professionals."

He mentioned that doctors could more easily identify, counsel, and potentially provide treatment for individuals suffering from this condition in the future.

Following a difficult year, Mr Gillis is set to look ahead towards an international journey with his spouse and caregiver, Jenny.

Even though VSS had transformed his life, according to Jenny, her spouse's fortitude was astounding.

"I must say, taking him places can be quite annoying since he isn’t an ideal passenger," she chuckled.



The Critical Role of Malaria Vaccines for Young Children in Uganda

__________________

OPINION By Sylivia Pretty Nuwenyine In Uganda, malaria continues to be among the top reasons for child mortality in those under five years old. The Ministry of Health reports that daily, at minimum, 16 individuals succumb to malaria, with 10 among them being young children. These figures are not merely numerical but signify lives extinguished, households shattered, and an ongoing public health emergency. Nonetheless, a novel and potent measure has emerged to strengthen efforts in combating malaria.

A Tested, Lifesaving Malaria Vaccine is Now Available in Uganda In April 2025, Uganda plans to formally introduce the R21 malaria vaccine. This vaccine will become part of the regular immunization program for young children aged below five years. Offering additional defense against malaria, the new R21 vaccine notably decreases the likelihood of severe cases and hospital admissions. Children will receive four doses of the vaccine at ages 6, 7, 8, and 18 months, ensuring they gain protection when they are most susceptible to the disease during infancy and early childhood.

Uganda will be joining other African nations such as Ghana, Kenya, and Malawi, which were initial sites for the global pilot program. These countries have already seen the benefits of this vaccine. The World Health Organization (WHO) reports that the malaria vaccine has decreased severe malaria instances among vaccinated children by 30%. Consequently, this leads to fewer hospitalizations, lower health care expenses for families, and ultimately, more lives preserved.

A Comprehensive Strategy for Vaccination The malaria vaccine isn’t a solitary remedy; rather, it’s an integral component of a larger plan to tackle malaria in Uganda. The Ministry of Health has pledged to incorporate this vaccine into regular vaccination programs, making it readily available at no cost for all qualifying children. By adopting this holistic method combined with additional measures such as distributing insecticide-treated mosquito nets and conducting indoor sprays, we can substantially decrease the spread of malaria within our communities.

An Urgent Plea for Parents and Communities Combating malaria demands joint action. It’s essential for parents and caregivers to make sure their kids get all four doses of the vaccine at the appropriate times. This way, they safeguard both their children and aid in the broader aim of eradicating malaria across Uganda.

For many years, malaria has been one of the primary causes of death among children in Uganda. However, we now have a chance to alter this story. Given that an effective vaccine is at our disposal, we should take strong action to safeguard our young ones.

The message is unambiguous: not one child deserves to perish due to a curable illness. With the introduction of the malaria vaccine comes an opportunity for progress, but it falls upon each parent, medical professional, and policy maker to guarantee that every qualifying child gains access to this vital safeguard. By uniting our efforts against this menace, we can secure a more healthy and thriving tomorrow for Uganda.

The author works at the Public Relations Department of the Ministry of Health.

Provided by Syndigate Media Inc. ( Syndigate.info ).


いしだあゆみさん 事務所も驚く体調急変…入院は今月に入ってから 昨年公開「室井慎次…」出演

歌手で女優のいしだあゆみ（本名石田良子＝いしだ・よしこ）さんが11日午前4時48分、甲状腺機能低下症のため都内の病院で死去した。76歳。大阪府出身。葬儀は近親者で行った。17日に所属事務所が発表した。

所属事務所によると、今月に入ってから体調を崩して都内の病院へ入院。最期は妹が看取ったという。体調の急変は予想外で事務所関係者も驚き、悲しみにくれている。

「ブルー・ライト・ヨコハマ」のヒットなどで知られ、女優としても活躍。フジテレビ「北の国から」で田中邦衛さん演じた五郎の妻やTBS「金曜日の妻たちへ」での名演でもお茶の間の人気を博した。

「ブルー・ライト・ヨコハマ」は累計150万枚のミリオンヒットとなり、NHK紅白歌合戦で3度歌唱した。

最後の出演作は昨年公開の映画「室井慎次　敗れざる者」「室井慎次 生き続ける者」となった。

1971年は肝臓病で闘病生活を1年送った後で復帰。その後はさまざまな映画、ドラマ作品で活躍した。

プライベートでは俳優・萩原健一さんと1980年に結婚したが、1984年に離婚している。